| Posted on Thu, January, 1st 2015 by THCFinder
Carly Chandler is three years old and suffers from severe seizures that leave her parents at a loss. She is the child that inspired the medical marijuana law that is currently being implemented in the state of Alabama. Carly currently has over a hundred small seizures a day. At night, the seizures worsen in to gran mal. These convulsions are so severe that her parents worry that the condition will kill their little girl. Sometimes, the episodes last for longer than ten minutes. Dustin Chandler, her father, says that sometimes, all he can do is bow his head.
Starting in early 2015, families like the Chandlers will be able to treat their children with medical marijuana. They hope that it will provide immense relief for their suffering children. “Carly’s Law” was funded from the University of Alabama at Birmingham to study the marijuana derivative, CBD oil, in order to treat seizures. Governor Robert Bently signed the legislation in to law nine months ago but the university had to wait for federal approval to actually begin the study.
Carly started having her seizures when she was just eight weeks old. Ten days after her first birthday, she was diagnosed with CDKL5, a very rare genetic disorder that causes severe neurodevelopment impairment. The symptoms? Frequent seizures. “We worry every day that she could die from what is called SUDEP, sudden unexplained death in epilepsy,” says Amy Chandler, her mother. “The brain literally stops and shuts everything down.” Right now, the little girl can’t speak or walk. She sits in a specially made rocking chair and rocks her head from side to side when she wants to go in her infant swing. In some ways, she is a normal three year old. She loves grilled chicken nuggets, although they have to be spoon fed to her. She laughs when her father plays with her and she especially loves the festive lights of Christmas.
Hoping that Carly’s brain can get a rest from her constant convulsions, the family would die just to hear their daughter speak. “Her voice would be priceless. Just to hear her talk to us,” Amy said. The Chandlers started their fight for cannabis after they saw a little girl in Colorado using CBD oil for her seizures. “We thought ‘Why can they have it and we can’t? Because they live in a different zip code?’”
Even though the scientific research regarding the CBD oil is limited, many parents have said that they see an extreme improvement in their children when put on oil regimens. There are many children around the United States that benefit from the use of CBD oil and hopefully, there will be many more as more parents work towards getting a real cure for their children.